Post # 27 05302020

For the past few months, I have been noticing new tumor growth on Spiritdog’s lower jaw and right rear leg, the exact same locations of the original tumors treated with radiation in May, 2019. Subsequent biopsies of both locations confirmed the recurrence (or continuance) of sarcomas. So, sorry to say, the result of treating him with both radiation and fenbendazole has been quite disappointing.

And it is what it is.

I decided to do palliative radiation at the Michigan State University Small Animal Clinic consisting of five treatments, each one a week apart, beginning with last Thursday. The goal is to provide him with more pain free time at a cost of ~ $3000. Is it worth it? Today he acts like a normal healthy middle aged dog, so, for me, the hope of keeping him that way longer makes it a yes.

After the radiation treatments, I will also look into some form of additional treatment even including chemotherapy if I can find a modality that offers minimal side effects with extended quality of life. Maybe metronomic chemotherapy using either cytoxan or Palladia, perhaps alternating it with fenben, perhaps not, or ….. something else?

How am I dealing with this turn of events? Like any human being, I bounce back and forth. I try to follow Spiritdog’s example, living in the present, saturated with appreciation, gratitude and the joy of being with him. In this present, he is acting like a perfectly healthy dog. And sometimes I manufacture stress by sliding into my fear of him dying, even mourning his death, creating stories about the future that obliterate being present, evaporating joy.

As a quick reminder about how our body responds to our stories, from Premier Health, (www.premierhealth.com. Feb 5, 2017): As your body perceives stress, your adrenal glands make and release the hormone cortisol into your bloodstream. Often called the “stress hormone,” cortisol causes an increase in your heart rate and blood pressure.

Fortunately, I can objectively watch myself generating stress because I take my blood pressure daily with my home monitor (usually twice, in the AM and PM). I plot the data on a graph so I can see both how my BP changes daily and over time.

So, how has my concerns about Spiritdog affected my blood pressure? Bounced it up to a higher average it seems.

I confounded my own data however because during this same time I also stopped taking one pill/day of Mukta Vati, a stress reducing herbal mixture. My “before” BP was averaging ~110/65 and when I stopped taking it (and began stressing about spirit fueled by the latest diagnosis), my BP has drifted up to ~125/80, some days lower, some days higher, with morning readings almost always lower than evening readings.

One’s blood pressure matters.

From the American Heart Association: The Systolic Blood Pressure Intervention Trial, known as SPRINT, studied more than 9,300 people older than age 50 who had high blood pressure and at least one other risk factor for heart disease. By using medicines to reduce systolic blood pressure to below 120, instead of below 140:

  • rates of heart attack, heart failure and stroke went down 30 percent; and
  • rates of death from those conditions dropped nearly 25 percent.

I could start taking MV again but am going to wait a couple more weeks to see if I can practice being more conscious of my stories and let go of those that do not serve my well being.

Everyone should have a home blood pressure monitor.

It is inexpensive, reliable and offers valuable data not only about the health of our body but also insight into the workings of our brain.

Post #26 05032020

To re-cap, I had finally reached a state of mind that results in a reduced stress level as measured by my blood pressure, now routinely 120/80 or less, without relying on cigarettes or any other drug.

How did I do that?

An insight comes to mind from the Est Training (now Landmark Forum) I attended so long ago (1980).  The punch line to that four day training was simple, startling: Life is empty and meaningless! The point being that it is up to each one of us to create meaning…… every day, in every moment.

And, a companion insight offered by Seth, as channeled by Jane Roberts, taken from The Nature of Personal Reality.

You are given the gifts of the gods,
you create your reality
according to your beliefs.
Yours is the creative energy
that makes your world.
There are no limitations to the self
except those you believe in.

Finally, there is the excerpt from my own book (11 Life Practices, practice #3, Life is Recreation):

The reality we experience is always personal and subjective.

About this we have no choice. It is the way our sensory system/brain is designed.

We could call this one of the rules governing this reality.

Rather than resist this feature of our reality, we do well to embrace it and use it to our advantage. Because we are creative beings, every moment is an opportunity to re-create new stories about ourselves, our lives and imagine new futures for ourselves.

In other words, we can’t help being story tellers. The very act of sensing reality and processing that data in our brain creates a story. It is the way we experience “reality.” However because we have created it, we also have the capacity to recreate it, i.e., to create a different story about ourselves, our current life experience.

So, returning to my high blood pressure episode, my story at the time was: the moment I completed my book, my purpose for “getting up in the morning” was gone. Suddenly I was experiencing my life as being empty and meaningless.

But (my story continues) I am a goal driven being. What do I do when I no longer have a goal?

After suffering in this anxiety driven state of mind, “wringing my hands” for several weeks, I suddenly (and accidentally) discovered I had super high blood pressure. This turned out to be a gift, a startling wake up call.  Once I realized I had HBP after a lifetime of normal blood pressure, I dove into the research. How could this happen, I wanted to know.

What I discovered is stress is a leading cause of high blood pressure.

  1. Now I got it. The anxiety and emotional distress of losing my sense of purpose left me feeling life was, indeed, empty and meaningless. This story created stress, which generated my high blood pressure.

What is my way forward? What can I do about it?

Once again, Spiritdog was/is my savior, my teacher.

When I look into his eyes, touch his fur, in the blink of an eye I lurch out of the past/future, into  being now-here, where joy lives. He wakes me up! He does for me what meditation can do, or sometimes the sun breaking over the trees on the eastern horizon, or sunlight shimmering across the surface of the lake, can do. But Spiritdog is highly reliable and always available. He, himself, is always in this space of being in every moment, and he is always at my side.

Being now-here, being, itself, is enough reason for appreciation, gratitude and joy he says without speaking.

The way forward is being now –here, he says without speaking.

When we are being now-here, the need for stories disappears. So do the stories themselves.

So the safe place in any storm is being now – here, returning us to joy.

 

And I love being goal oriented, having a sense of purpose. I don’t need to give this up; I can simply put my doing where it belongs, in the context of being. I can recognize I am whole and complete, with or without goals, that life is whole and complete as it is without me adding any of my stuff to it. And I can also pay attention, notice opportunities that offer me the possibility of making a difference, of contributing to the whole, that excite my passion ….. and show up by pouring my energy into actualizing them (practice #6 in 11 Life Practices).

Earlier in life I did this by practicing engineering, solving technical problems, and toward being an activist, doing what I could to solve this problem or that one, and later it was toward supporting groups of people in becoming high performance teams. In this later phase of my life, my passion has been devoted to writing. I wrote books, Dianna’s Way, then 11 Life Practices and now it is to write this, right now, right here. More fundamentally, writing has been a thread throughout my life, a way for me to explore my own personal reality.

But, none of this replaces being now-here, drenched in appreciation, gratitude, and joy. It is simply the content of my life that is fun to do.

So, as I see it, the way to handle stress on a day to day basis without using drugs, whether cigarettes, weed, or Prozac, is twofold:

  1. Practice being now-here.
  2. Be patient, paying attention to opportunities for contributing to the whole. Then show up!

Summarizing, life is bound to be up and down, exciting and boring, challenging and sleep inducing, projects start and end, careers begin and end. But no matter how things are going in the plan b) category, our back up is always the capacity to avail ourselves of plan a). No matter what we are up to in life, if we always nurture the capacity to be now-here, and practice it (why it is practice #1 in Life Practices), we are going to be OK.

 

 

 

 

 

Post #11 07042019

It was 11 years ago today that I was writing a many page letter to my wife, Dianna, after she died on February 20, 2008 at 7:04 AM.

As recounted in my book, Dianna’s Way, a memoir about our life together, I was deeply immersed in grief over her death and this letter was my way of completing my relationship with her (practice #9 in my second book, Creating a Life that Works/11 Practices, currently being edited).

It has been my experience that when someone we love dies, our grief often includes an element of feeling guilty about something in that relationship. Not surprising. Few of us express Love perfectly in every moment of every day.

However, the beauty of guilt is it invites us to create and experience forgiveness, of self, of others.

This act opens the door wide to completing our relationships.

Simply put, the steps to completing our relationships are to a) notice there is something amiss in the relationship, b) own it (take responsibility for our own feelings, words and actions), c) forgive ourselves, then, if the shoe fits (if they have harmed us) forgive them too, d) share our completeness when appropriate, e) repair any damage we have done as best we can, f) honor their choices about whether to complete with us or not, without being bound by their choices.

 

So that was then and this is now.

I guess I never thought about it this way before but I had to complete my relationship with my dog, Spirit, too. This is an amazing insight for me!

In retrospect, completing is exactly what I did when I recognized I was transmitting negative energy into his psyche and body with my fear-filled thoughts and feelings about him dying of cancer.

Just by noticing my own negative energy, forgiving myself for harboring them, letting them go and creating a positive, constructive energy, both within my heart and mind as well as expressed in action, I could achieve completion with him. Now the way was open to moving forward with a practical, constructive plan of healing.

Of course, in all of this, I will continue to honor his choices in this matter, which may mean him choosing to end his life in a few months or not. I have no say in his choices.

Repairing the damage is simply doing what Love does (practice #5).

In this situation, this means doing whatever I am able to support him in his healing process.

This began with the insight that there was a practical way forward that had some possibility of success: radiation on the two tumor sites to kill the cancer cells in those locations, followed by an experimental CBD oil based chemotherapy for the next year – and, of course, all the associated support he needs in the form of wound healing, good diet, exercise and, in general providing a life he loves living.

Most of all, what Spirit, and any dog we have in our lives, most wants, most keenly requests, most appreciates, is always open and ready for, is that we be present to them in whatever moments we are willing to give (practice #1).

They, themselves, are masters at this practice, so teachers for us whenever we choose to be a willing student.

Doing what Love does also includes shifting my attitude to a positive, constructive frame (practice #7). There is a possible way we can achieve healing. No guarantees, the future is unknown, he may live a year or five. I don’t know. What I do know is, no matter how it turns out, I will have no regrets about everything I am doing now. Whatever happens, I will have done everything I could have done.

So, now we are in the phase of bucking up (practice #10), doing whatever it takes over the long haul.

We also know, given how this reality is designed, all of us are here only for a little while. We all leave this reality one day.

If I live that long, one day, I will experience Spirit dying, whether at age 8 or 15 or anywhere in between. When I held that squirming little puppy in my arms for the first time, I knew I was signing up for this experience too, that I would likely have the opportunity, painful as this always is, to practice letting go. (practice #8).

Life provides us with life, an amazing game to play.

 

So, why am I getting all this practice at care giving?

Life brings us the experience we need to expand our capacity for being and expressing. Nothing in life is an accident, not even “accidents.”

So, why me?

Why now?

I am naturally inclined to lean toward the mental, rational, side of experiencing life. I often love thinking about life rather than living it.

Care giving brings me back into life, into being present; how would I know if someone needs help if I am not paying attention? When present to what is, and what is is someone I love, who is in need, I am drawn into my own emotional nature, my emotional sensitivity, expressed as empathy, compassion.

Keeps me in touch with my heart.

All I need to do is pay attention to what it is saying, moment to moment.

So, care giving offers a perfect venue for practicing not only listening to my heart but to practice all of these practices.

Perfect.

 

 

It has been a bit over two weeks since radiation treatments ended for Spirit and he is slowly beginning to “come back to himself.”

Today, for the first time in a long time, he picked up a tennis ball and wanted to play ………. until he kind of realized he is not ready to play yet. Looked at me for a moment, dropped the ball and stared at me with a dumb look on his face, like “What the hell am I thinking here!” I almost had to laugh.

The underside of his jaw is still completely hairless and the right side of his lower jaw, where the tumor was located, is still swollen. That is drool hanging down off his jaw in the photo.

A week ago, he wouldn’t let me touch it.

While it must still be tender, he did lay his head on my shoulder the other day as we were driving to our walking place. Before all this happened, his habit was to ride in the car with his front feet on the center console, paw me when he wanted me to pet him, and nuzzling into my neck now and then too – so it is nice to notice he is able to do that a little bit again. A week ago, he was laying on the back seat of my minivan, period.

I still don’t touch his jaw though.

His leg, the other tumor site, is still hairless too but I don’t think there is much, if any, pain there anymore. Looks bad but don’t think it feels bad for him.

 

Because this leg wound is unprotected by a fur layer, each time we go for a walk, I put a Telfa non stick pad on it, hold it in place with Nexcare gentle wrap (sticks to itself), then cover that with a couple of two inch wide self sticking Velcro strips that protect against damage to his skin from brush, etc. Works very well, leaves him free to walk normally and infinitely better than the various medi boots out there, which are clumsy, always coming off and are not water proof anyway.

This routine works well whether it is raining out, or he takes a dip in a creek or whatever. As soon as we get home from our walk, I take all of it off, dry his leg with a paper towel if necessary, save the Velcro for the next time and dispose of the rest of it.

After this is done, I spray his leg (and jaw) with a wonderful Aloe Vera Spray product I found on Amazon (www.sevenminerals.com ). This is a great product for applying healing Aloe Vera without having to touch the area. A godsend for helping Spirit’s jaw, in particular. Now, when I start to spray, he lifts his head up and back so I can apply it – obviously it feels really good to him.

Next time, we will talk about my CBD oil chemotherapy experiment.

Blog post #7 06072019

So far, I have been talking about the day to day nitty gritty of caring for Spirit as we proceed through his healing process.

But, as it always is, it is my healing process too, if we broaden the meaning to include creating a more integrated, conscious self as a “healing process.”

All of us experience being divisible in this reality as “you and me.” However, the underlying reality is we are also and always in life together, indivisible, part of a mysterious whole. Our pathway toward a more fully integrated way of being, expressing, and experiencing this is to practice. (Practice #4 in my upcoming book, currently in editing, tentatively titled, Creating a Life that Works/11 life Practices.

In this book, we explore how this reality is put together and how we might practice playing this game in this more fully conscious way.

I have titled these practices as follows:

Part I Being (Practices in being more fully who we are)

  1. A Beginning Place/Being Now-Here (practice being present to what is)
  2. Our Inner Voice     (practice listening to our inner voice)
  3. Life is Re-creation (practice noticing the stories we are always creating)
  4. Me and We (practice experiencing being one with Infinite Being expressing)

Part II Expressing Being (the practices of playing the game with our words and actions)

  1. Doing What Love Does (this is Love with a capital L, how God expresses Love)
  2. Showing Up
  3. Choosing our Attitude
  4. Letting go
  5. Completing (practice disappearing upsets in our relationships)
  6. Bucking Up (practice fulfilling the promise of any long term commitment)
  7. Lightening Up

What I am discovering is we have the opportunity to practice most of these practices almost every day! It may be true that we could be practicing all of them every day. Perhaps, even in every moment!?

In any event, I am going to report how I experience engaging in these practices as Spirit and I go through our healing process together.

Why?

Reporting helps me to practice. And, who needs to practice more than me?

And, when would be a better time than now?

I am 80 years old. Probably shouldn’t wait much longer! J

 

So, let’s take a look at how these practices appear in one daily life, my own.

 

This particular life adventure began when I noticed what is: a lump on Spirit’s rear leg, then not long after that, another one on his lower jaw. (Practice #1)

What first emerged out of this awareness was noticing my own contribution to his illness. I realized I had long been busy creating a reality about him getting cancer with my fear of him getting cancer. (Practice #3, noticing my own story, reported in an earlier post.)

Next, I chose to let that (debilitating) story go. (Practice #8).

I consciously chose to create a new story. (Practice #3 again): I will treat this as a challenge, as an opportunity for healing. I would chart a new course, sailing toward an unknown shore, to be sure.

I may not know the outcome but am open to whatever Life brings, with love in my heart, grateful for each moment we have together. (Practice #7)

I could have let nature take its course and let him die (in a few months, I was told).

When I looked into his liquid brown eyes, my heart spoke, loud and clear (Practice #2).

I will spend whatever resources I am able to give him a chance at life (Practice #5).

Many, without the money to do anything else would have to make the heartbreaking decision to let him go (practice #8 again, and a much tougher row to hoe). How blessed we are that I have enough energy and money to use help from the veterinary profession for the treatments needed. I feel incredibly grateful.

Doing what Love does, in this situation, asks that I step up to meet the challenge (Practice # 6). I must be willing to provide my daily, even hourly, attention to his well being over the many months, perhaps even years to come. This is not going to be a quick fix but a long journey through surgery, radiation, and whatever other means I can bring to the table. (Practice #10).

One day, as I am looking at him sleeping peacefully, lost to the world, it occurs to me that I am doing this for him …. and for me ………. and what is the difference? What works for him works for me too. We are engaged in a win-win game together. Everything I feel for him I feel for me too. (Practice #4). I feel complete with him in this moment. (Practice # 9)

It also occurs to me one day, things could be so much worse.

His cancer is treatable, appears not to have metastasized, his appetite is good, his poops are good, he sleeps a lot (a key healing activity all by itself), loves being petted and is still excited by deer crossing a field, or a rabbit standing on the road, or when the plumber or a friend comes to the door.

He loves life.

Enough motivation for me.

So, whether he decides to leave in a few months and stays with me for many more years to come, I feel blessed. I feel cheered by this challenge, even joy! (Practice #11)

 

Two practices I have touched on, completing (practice #9) and the practice of being me and we (practice #4) warrant a bit more comment.

Unlike with my human relationships, which are more prone to fall in and out of completion, I am essentially almost always complete with Spirit.

How do I know this?

Whenever I look at him, there is a smile in my heart.

If there is an occasional incompleteness, if something needs repair, it is always within me (my fear based thoughts about losing him being one example). But, day in, day out, being complete with Spirit is our normal state of being together.

 

Robin Wall Kimmerer (Professor, State University of New York and author, Gathering Moss and Braiding Sweetgrass) proposes using the word, Ki as the singular pronoun to use when referring to non human life. This gets rid of “it” as in I ran over “it’ with my car or “it” landed on my birdfeeder or….

 

Naturally, as she notes, the plural of ki is a word we already have, kin! Perfect!

So, Spirit is Ki.

But I am Ki, too.

Each of us is part of the All That Is, Infinite Being expressing. Spirit expresses as Spirit, I as me, each of us, as who we are being in this reality.

We are all kin.

While in this duality reality of light/dark, large/small, good/bad, right/wrong, we mostly experience being me and “other.” But some magical moments, at least, I experience being both me and we. (Practice #4) He has given me so, so many such moments.

And he sleeps here at my feet, healing his body. So far, anyway, he is choosing to stay here, with me in this life.

 

 

 

To pick up where we left off, the biopsy done by my local vet on spirit’s leg showed it to be a grade I sarcoma. Good news. If it has to be cancer, a sarcoma like this is not as aggressive as other types, so slower to metastasize – and grade I is much better than grade II or III, where the prognosis is not as good.

I take him up to MSU SAC, oncology section (Michigan State University Small Animal Clinic, a 75 minute drive north from where we live).

As to the tumor on his lower jaw, a needle biopsy done at MSU Small Animal Clinic indicates it, too, is a sarcoma but not clear about what kind. We would need to do a biopsy on that to find out.

More scans are done on his lungs and other organs and it appears the cancer has not yet metastasized so, at this moment in time, he seems to have two localized tumors.

I appear to have three choices: a) do nothing and watch him die in a few months or b) they can lop off a chunk of his jaw and remove the entirety of his hind leg (dogs get along just fine with three legs they say) or c) I can opt to do radiation on both tumors and see how it goes.

We are at a crossroad.

Options a) and b) are out of the question for me.

If I just did not have enough money to do anything else, I would have to let him die but, though I can ill afford it, I do have the money to do more.

As to option b), my heart says no.

I would not want to live without a part of my jaw or a missing leg.

Many others, both human and dogs, have lost even more of their body parts and not only survive but thrive, going on to live extraordinary lives. Bless them; I have nothing but admiration for those with that kind of determination, courage and love of life.

But I am not willing to do that to myself. I guess life does not mean that much to me? I can’t say. I just know it is not for me. When I stare into his eyes, in my heart I know it is not for him either.

Sometimes we get to choose which cross we want to carry. This is one of those times.

I choose option c, radiation.

It is going to be very expensive and time consuming, thousands of dollars requiring 18 daily trips on consecutive days to the radiation facility, which for us, is a 75 minute drive to Canton, a western suburb of Detroit (if the traffic is light; who knows how long in rush hour). And he will have to be sedated 18 times, day after day, which worries me.

Any wounds he has must heal before starting radiation or there will not be enough healthy tissue left to ever heal. I decide not to biopsy the jaw tumor, creating another wound that has to heal.

The tumor on his jaw is small but growing. The tumor on his leg is pretty big already. Since the biopsy on his leg left is already an open wound, we agree we might as well remove as much of the leg tumor as possible (no possibility for clear margins though – too many tendons, ligaments and nerves in the way) and leave the tumor on his jaw untouched – what’s to be gained by creating another, even harder wound to heal.

Time is of the essence. No point of in doing radiation once metastasis has occurred.

So, they do the tumor removal on his leg and now it becomes a waiting game.

Will his wound heal soon enough for us to accomplish the radiation protocol before metastasis occurs?

Will just have to bet it works out.

 

 
 
 And so Chili, my last Golden Retriever, did.
 
As each one who has chosen to be in my life has.
 
Hurts my heart each time they leave. 
 
Why do dogs live such short lives>
 
So we can learn the minutes of life can be counted though we don’t know how many we will have together … and maybe … learn something about making them count.
 
So, we might learn something about Appreciation and Gratitude and Love.
 
So, we might learn something about the meaning of life.
 
They do all this without saying a word.
 
Amazing.